www.MyGirlsBlood.org nonprofit / charity
Cheryl D'Ambrosio, Founder
Awareness of girls and women with bleeding disorders
Helpful References

If you live in the USA:
Please be sure you are connected to your Hemophilia Treatment Center to help you with services. Here is the link through the National Hemophilia Foundation.

http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=203&contentid=385


If you live or are traveling outside of the USA:
Please review the 2009 Global Passport to find a service nearest you. This information is through the World Federation of Hemophilia. Passport 2009: Global Treatment Centre Directory is a handy directory of hemophilia organizations and treatment centres worldwide. The 2009 edition has 1,105 listings from 113 countries including contact names, telephone and fax numbers, as well as e-mail and web site addresses. It is a useful resource for people who are travelling to other countries and as a directory of hemophilia treaters around the world. Click link below then look under the tab "Resources" and Treatment Center Directory (Passport).

http://www.wfh.org/index.asp?lang=EN


Helpful References

www.4women.gov/faq/bleed.htm - US Dept of Health & Human Services
www.projectredflag.org - National Hemophila Foundation website for women with bleeding disorders
www2.cdc.gov/ncbddd/htcweb/index.asp - bleeding & clotting disorders survaillance
www.cdc.gov/ncbddd/hbd/surveillance.htm - CDC surveillance, hereditary blood disorders
www2.cdc.gov/ncbddd/htcweb/index.asp - locate an HTC in the US
www.wfh.org - world federation of hemophilia
www.hemophilia.ca - Candian Hemophilia Society
www.hemophiliafed.org - advocacy group
www.kelleycom.com - LA Kelley communications
www.ladybugsfoundation.org
- LadyBugs Foundation

Women Bleed Too website from the UK: http://www.womenbleedtoo.org.uk/index.php?pub_content_id=3


 

vonWillebrand Disease-specific information

http://www.kelleycom.com/books_vwd.html - vonWillebrand Disease-specific publications form LA Kelley Communications, Inc.
www.allaboutbleeding.com - cls behrings VWD site

http://www.humate-p.com/
Humate-P® for Von Willebrand Disease-
Humate-P® is a von Willebrand factor replacement therapy with over 20 years of demonstrated safety and efficacy (info provided by CSL Behring)



New Memoir

http://www.poolingblood.com- Memoir of a family with sisters who have severe factor V deficiency

Do you know of other references?
Please send them to us at: mygirlsblood@yahoo.com