| Roll Call
Bleeding Disorders come in many flavors. What flavor are you? And, where do you live?
Send a note to: mygirlsblood@yahoo.com to be included on the Roll Call.
==>Definitions were taken from the National Hemophilia Foundation website.
Factor I deficiency - also known as Fibrinogen deficiency, afibrinogenemia, dysfibrinogenemia, or hypofibrinogenemia
--one woman from Tallahassee, Florida
Factor II deficiency - also known as prothrombin deficiency
--one woman in ...
Factor V deficiency - also known as Owren's disease, labile factor deficiency, proaccelerin deficiency or parahemophilia
--two women (sisters) with severe (less than 1%) from Seattle, Washington
--one woman with severe (less than 1%) in Calgary, Alberta
--one 3 month girl from South Carolina (and her 2 year old brother, too)
(not to be confused with Factor V Leiden - a type of thrombophilia)
Factor VII deficiency - also known as Alexander's disease, stable factor deficiency, or proconvertin deficiency
--one woman with Hemophilia A from Benton, Kentucky
Factor VIII deficiency - (Hemophilia A)
--one symptomatic carrier from Bellevue, Washington
--one woman with factor VIII from Sudbury, Ontario
--one young girl with mild factor VIII from New Zealand
--one woman with mild Hemophilia A from Shepherd, Texas
Factor IX deficiency - (Hemophilia B) also known as Christmas Disease
--one woman from Allentown, Pennsylvania
--one woman from Dover, Ohio
--one teen with severe Hemophilia B from ??
Factor X deficiency - also known as Stuart-Prower Factor Deficiency
--one woman in Fife, Washington
Factor XI deficiency - Hemophilia C, Plasma Thromboplastin Antecedent (PTA) Deficiency, Rosenthal Syndrome
--one woman with factor XI from Tampa, FL
--one woman with factor XI from Tampa, FL
Factor XII deficiency - Hageman factor deficiency
-- none yet!
Factor XIII deficiency - also known as Fibrin Stabilizing Factor deficiency
--one woman with factor VIII vWD Type 1 from Winchester, VA
von Willebrand Disease -
--one woman in Delhi, India
--one woman in Cincinnati, Ohio
--one woman in Milan, Italy
--one woman with severe from Fort Wayne, Indiana
--one woman with vWD 2A from Tampa, FL
--one woman with vWD 2A from Tampa, FL
--one woman with type 2B variant from Covington, Washington
--one young lady with type 2b variant from Covington, Washington
--one woman with vWD type 1 from Fort Wayne, Indiana
--one woman with vWD Type 1 from Brookfield, Illinois
--one woman with vWD Type 1 from Carlisle, Pennsylvania
--one woman with vWD Type 1 from Long Beach, California
--one woman and her two young daughters, vWd Type 1, Granbury, Texas
--one woman with vWD Type 1 mild from Pleasant Grove, Alabama
--one woman with vWD type 2A from Milwaukee, Wisconsin
--one woman with vWD type 2A from Linwood, New Jersey
--one woman with vWd Type 1A from Yorkshire UK (and her daughter too)
--one woman with vWD type 2M from The Philippines
--one girl with vWD type 2M from The Philippines
--one woman with vWD type 2M from Detroit, Michigan
--one woman with severe type 3 vWD from Manchester, England, UK
--one woman with vWD type 3 from Oakdale, Louisiana
--one woman with severe type 3 vWd from Kidderminster, Worcestershire UK
mild hemophilia
--one woman with mild hemophilia from Mountlake Terrace, WA
Symptomatic Carrier
-- one symptomatic carrier, Calgary, Alberta Canada
polycythemia - (too much iron in blood)
--one woman from tbd glanzmanns thrombasthenia (platelet function defect)
--one young lady from Wausau, Wisconsin platelet pool function disorder
--one woman from Cincinnati
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