www.MyGirlsBlood.org nonprofit / charity
Cheryl D'Ambrosio, Founder
Awareness of girls and women with bleeding disorders
2010 WFH Congress




The 2010 World Hemophilia Congress has now published many items which should be of interest to you.  Please use this link.

===> 2010 World Hemophilia Congress



Stay tuned for more Congress material to be made available in the upcoming weeks.

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If you are interested in scanning my trip report scroll down and see some of my favorite presentations, personal photos and excerpts from the official site (above).   No funds from MyGirlsBlood were used to support this writing or presentation or travel, Cheryl paid for this in full out of her own piggy bank. 
      Your feedback is appreciated.  -- Cheryl D'Ambrosio

Table of Contents

2010 World Hemophilia Congress
Buenos Aires, Argentina July 10-14, 2010

Disclaimer: Some of the notes are excerpts have been extracted from the official newspaper of the 2010 WFH World Congress. Opinions expressed are those of the individuals and organizations cited. I felt that sharing some thoughts and quotes from this newspaper would be a good way to communicate the spirit of information that was shared at the Congress, to those who would not have had the opportunity. Individual's photos taken by Cheryl D'Ambrosio with permission from 'nearly' each person.


File 1 Topics - click this link

  • Welcome to Buenos Aires
  • Spotlight on our host NMO
  • Skinner to address underserved populations in WFH global family
  • Poster Exhibit
  • WFH global training for national patient organizations focuses on the future
  • Advocacy in Action
  • WFH Treatment Room
  • Participants watch surgery in action

File 2 Topics - click this link

  • Established strategies, networks support children and parents
  • Rare bleeding disorders lead to lifelong commitment
  • Acceptance, education and outreach key in supporting women with bleeding disorders
  • Save One Life
  • Parovirus elimination continues to be elusive

File 3 Topics - click this link

  • Novel therapies point to less frequent infusions
  • Women and Bleeding Disorders (see paper below "Reproductive Health...")
  • WFH References Library of articles about women with bleeding disorders
  • Patient registries, twinning critical to national care program
  • Booths
  • Home treatment key to improving outcomes in developing countries
  • New mix of health problems confronts ageing bleeding disorders population
  • Inconsistent testing limits treatment for platelet disorders
  • Networking

I am also posting these writings from the World Federation of Hemophilia Research Library.  More are on their WFH website by just browsing through their research section.

REPRODUCTIVE HEALTH IN WOMEN WITH BLEEDING DISORDERS
  Rezan A. Kadir, Department of Obstetrics and Gynaecology
  The Royal Free Hospital, London, U.K.

Andra H. James, Division of Maternal-Fetal Medicine
  Department of Obstetrics and Gynecology
  Duke University Medical Center, Durham,
  North Carolina, U.S.A. — June 2009

GYNECOLOGICAL COMPLICATIONS IN WOMEN WITH BLEEDING DISORDERS
  Revised Edition - Renée Paper

  Hemophilia Foundation of Nevada
  Nevada, U.S.A. — June 2004

PREGNANCY IN WOMEN WITH INHERITED BLEEDING DISORDERS
Paul L.F. Giangrande

Oxford Haemophilia Centre and Thrombosis Unit
Churchill Hospital
Oxford, U.K. — June 2003